Programs specifically for YOU!Learn more about our Circles of CareCheck out where we will be!Services that suit your needsLearn more about us!


CF PHARMACY INC. Resources
For The Cystic Fibrosis Community


PATIENT Access Network Foundation
provides assistance with the copays & medications for the UNDERinsured
www.panfoundation.org


Parenting Children with Health Issues




RESOURCE

 

WEBSITE
  Cystic Fibrosis Web Ring http://webring.ajcf.com/
  Ambry Genetics www.ambrygen.com
  Cystic Fibrosis Worldwide www.cfww.org
  Cystic Fibrosis 101 www3.nbnet.nb.ca/normap/CF.htm
  Reaching Out Foundation www.reachingout.org
  Milan Foundation www.milanfoundation.org
  Starbright World www.starbright.org
  Access-Able Travel Source www.access-able.com
  The Breathing Room www.thebreathingroom.org
  National CF Awareness www.cfawareness.org
  CFRI (Cystic Fibrosis Research Inc.) www.cfri.org
  Boomer Esiason Foundation www.esiason.org
Cell Science Medical Directory www.cellscience.org
National Transplant Assistance Fund - 1-800-642-8399 www.transplantfund.org
US Equal Employment Opportunity Commission (EEOC) www.eeoc.gov
Transplant Support - Lung Heart htttp://groups.msn.com
ADA (Americans with Disabilities Act) www.socialsecurity.gov/disability
Cystic Fibrosis Council/Yahoo Parents Diseases Groups www.yahoogroups.com
  American Organ Transplant Association www.a-o-t-a.org
  Children's Transplant Association (COTA) www.cota.org
  PhRMA Patient assistance Program www.pharma.org/
  The Reach for the Stars Foundation www.r4stars.org
Angel Flight Organizations www.angelflightamerica.org
  2nd Wind Transplant Organization www.2ndwind.org
  Chicagoland Adult Association www.chicagocfawareness.org
  Chicago CF Care Specialist www.wecare4lungs.com
  CF Liver Resource Email Address CF_LiverDisease@yahoogroups.com
  Special food program - no qualifying! www.angelfoodministries.com
  Site for Kids with CF http://members.chello.nl/~wvos4/cfkids/index.html
  Kids/Teens email group KidsTouchedByCF@yahoogroups.com
  Parents of Infants & Toddlers http://health.groups.yahoo.com/group/CF_Infants_Toddlers/
  Adult Assistance in New Jersey www.njsocf.org/adult-prog.shtml
  KidsHealth Recipes for Kids http://kidshealth.org/kid/recipes/index.html
  Lungs for Life Foundation - aid for CF & CFTX http://www.lungsforlife.org/
  CF support for siblings with CF http://www.siblingsupport.org/
  Compassion & Support programs http://www.loveandlogic.com/
  Zenpep Z-Points Program http://www.zenpep.com
  Healingwell - community, information, resources http://www.healingwell.com/pages/Cystic_Fibrosis/
  Parenting Children with Health Issues http://www.parentingchildrenwithhealthissues.com/index.html
  Daily Strength (Support Group) http://www.dailystrength.org/c/Cystic-Fibrosis/support-group
  Shark Tank (Support Group) http://health.groups.yahoo.com/group/sharktank/
  Crataegus (Support Group) http://health.groups.yahoo.com/group/crataegus/
  CF Message Board http://www.tdl.com/~barky/cfboard/wwwboard.html
  Vest Therapy All you want to know about the Vest Therapy Choices






Research & Treatment Programs
Cystic-L Research News......................................
Cystic Fibrosis Research Inc................................
Cell Science.......................................................
Cystic Fibrosis Research Link..............................
Clinical Trials......................................................
Stem Cell Research............................................
  www.cystic-l.org
www.cfri.org
www.cellscience.org
www3.nbnet.nb.ca/normap/CF.htm
www.clinicaltrials.gov
http://health.groups.yahoo.com/group/StemCellInformation/

 

To report suspected Medicare fraud call the Office of the Inspector General: 1-800-HHS-TIPS To make a complaint against a healthcare facility or health professional in Florida, call: 888-419-3456.

To report suspected child abuse, please call: Fla. Dept. of Children & Families at: 1-800-96ABUSE (962-2873)
TDD: 1-800-453-5145 FAX: 1-800-914-0004

To report suspected Fla. Public Assistance Fraud or Abuse online, go to: http://www.dcf.state.fl.us/access/ReportFraud/MainForm.aspx

Our accrediting organization is the Accreditation Commission for Healthcare. You may reach them at www.achc.org Tel: 919-785-1214

 

From time to time we will update and include others that might be of help to you. If you know of others, please let me know. bevd@hhcs.com.


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