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Please join us & take part in the Genentech "Heroes of Hope" program!
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to learn more!

Introducing CF Living, A New Resource for CF Patients and Caregivers
Click here to learn more!

Cystic Fibrosis Clinical Trial Information:
DO YOU HAVE CYSTIC FIBROSIS AND ARE TAKING PANCREATIC ENZYMES?
(Please note...they pay differently)

Clinical Trial #1 - CLICK HERE to learn more about this clinical trial & date

Clinical Trial #2 - CLICK HERE to learn more about this clinical trial & date

ED DAYS AND CONFERENCES FOR 2008


We can look forward to many great education events in the coming Year. A few are listed below. We will add others as they are scheduled and confirmed.


"The Power of Two", a book due to release this Fall!

A Twin Triumph over Cystic Fibrosis! Click here for more details!
   
A New Book Publication!

Parenting Children with Health Issues: Essential Tools, Tips and Tactics for Raising Kids with Chronic Illness, Medical Conditions and Special Healthcare Needs by Foster Cline, MD and Lisa Greene

Publication Info: June 30, 2007 for $24.95

Currently available through Love and Logic at www.loveandlogic.com for $24.95 Available to order now at discounted pricing to ship on June 30th at www.amazon.com and www.barnesandnoble.com

ISBN 10: 1-930429-89-4 and ISBN 13: 978-1-930429-89-5

Book Description:
This book provides help for parents who are raising special needs children with health- related issues. Parents, caregivers and professionals will learn essential techniques to help children comply with medical/dietary requirements, take responsibility for healthcare and develop good coping skills. Get practical and compassionate answers to tough questions as well as effective ways to communicate about medical issues with children of all ages.

Learn how to:
- Encourage children to love life despite health challenges.
- Handle refusal to take medication and do medical treatments.
- Understand and respond to ill children’s special emotional needs.
- Avoid power struggles and other common parenting traps.
- Facilitate children’s concern for their illness without frightening them.
- Promote healthcare responsibility without nagging or lecturing.
- Enable children to make good self-care decisions about their bodies.
- Communicate with children about their medical issues in ways they’ll understand.
- Separate “I can’t” from “I won’t” and respond accordingly.
- Navigate sibling, family and couple relationship issues.
- Identify normal emotional responses to a child’s diagnosis.
- Cope with the demands placed upon caregivers in practical ways.

   
Aug. 1-3, 2008 CFRI 21st Annual Education Conference, "Living A Miracle"
Sofitel San Francisco Bay Redwood City, CA
Contact: David Sohoo 1-650-404-9977
Aug. 3-8, 2008 CFRI Teen & Adult Day Retreat "Club Med" at the Vallombrosa Conference Center
Menlo Park, CA
Contact: David Sohoo 1-650-404-9977
Oct. 23-26, 2008 CFF NACFC 2008
Orlando, Florida
Call 1-800-FIGHT CF for more information
Nov. 8, 2008 CF Families & Clinicians --Put on your calendars.
Central Florida Support Group Education Day

So. Conway United Methodist Church-- FLC.
3401 So. Conway Rd. Orlando, Florida
Contact: Beverley Donelson (GrandmomBEV)
1-898-4427 or 1-888-307-4427

We will add others as we get them. We hope to see you there!

 

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